Wednesday, August 16, 2006

My face seems to be a little swollen. I'm a little breathy. Tongue seems swollen. I will talk with the doctor today about that.

Tuesday, August 15, 2006

Tired...all day.
Sty in the right eye.
I don't have the pain in my legs anymore. I can walk again.

my tongue seems swollen.

I'm going to take a shower and try to get out of the house for a couple hours.

Saturday, August 12, 2006

Very odd pains in my foot and then my knee. I couldn't even walk. After a couple days it went away> These things happened to me a lot when I was first getting this desease that I have.

Thursday, August 10, 2006

Dialysis went by fast today and that's a good thing. I'm at about a 7 on a scale of 1 to 10. Caroline is coming to visit me tonight before going back to Los Angeles. She only has about three hours so we'll just have dinner and relax although relaxing with Caroline is not really possible. My sister is picking her up at the train station and bringing her over to me. They don't like me to drive.
...She arrived in a whirlwind. We had chinese food for dinner and as fast as you can Mu Shu Pork she was gone. We did have a nice time and she'll be back in August for a few months to do a play in New York.
I'm up late right now. Well, late for me. It's about midnight. I can't sleep and I'm not sure why I'm so restless. I don't know if it's the Cytoxan or just me. Although, I don't think anything is ever just me. It's one of the medications that I take. Maybe I'll try to go to sleep again.
I got Bill Turner's Memorial DVD in the mail today. I have to watch it one of these days.

Tuesday, August 08, 2006

I've been feeling very tired today (Monday and Tuesday). I'm not sure what it is. It's now Tuesday afternoon and I'm starting to feel a little better. I 'm getting a little more energy and I'm not as short of breath as I was yesterday. I've been doing the xopenex treatment every four hours and that's been helping me.
My sister brought me up lots of things to eat but I still have to make it out to pick up a prescription and some pineapple juice or apple juice.

Sunday, August 06, 2006

I don't feel great today. I threw up three times. Mostly fluid. I have very little energy. I just want to sleep. I took my BP and it was 135/80 with a heart beat of 92. I called my niece to see if someone would come over and make me an egg. Last night it was very difficult to get to sleep. I finally fell asleep at around 5:00AM and then I didn't want to get up the rest of the day. I was supposed to go to a barbecue but I just couldn't. I didn't have the energy and I didn't want to sit outside in the heat.

Saturday, August 05, 2006

It's Saturday: at 9:00AM I got a full hour massage from Dana. Then I came home. I was going to a party but I thought it best that I pass. I'm a little short of breath, especially when I'm active. Whenever I do anything, I get short of breath.
Now, I'm home. I had a couple chicken legs for brunch. I'm going to just relax and not drink a lot. I'm looking forward to Monday, already, so I can get all the fluid out of me. I want to make sure this Cytoxan works.
2nd day going into third day. I was .2 under my dry weight and that made me totally exhausted. I had to use a wheelchair to get home and then right into bed. I could hardly move. Marybeth brought me over dinner (shrimp cocktail and chicken legs). I ate everything and fell asleep. During the evening I got up a few times and had some to drink. I gradually got my strength back and I'm feeling good now. It's after midnight. So far so good. I had a little headache but I took a couple tylenols and it went away.

Before I went to bed I took Singular 10MG.